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pediatric cancer

Pediatric Cancer: Be Part of the Solution

Update September 1, 2015

Since I published this seven years ago, Caleb Spady slipped from his earthly father's arms into the embrace of his Heavenly Father. He passed away 15 months after his diagnosis on July 21, 2009. Many others have been diagnosed with DIPG since then. It is a cruel and horrible disease.

But there is good news. Research is being done; treatments are being perfected. Because people are becoming more aware, more funding is available for all pediatric cancers. Don't be afraid to learn about pediatric cancer. Awareness doesn't lead to cancer diagnoses. Awareness leads to hope.

Knowledge. It really is a good thing.

September is Childhood Cancer Awareness month. Each year, Chili's holds a Donate-The-Profits day to benefit St. Jude's research hospital. This year, that day is Monday, September 14, 2015. Find a Chili's that day and eat up! Just by doing that, you'll be making a difference in the life a child.

Published on: Aug 29, 2008 

Five months ago, at a huge party to celebrate a life that we already knew would be way too short, Paxten Andrew Mitchell gave me a big hug and a kiss. As he fell into my embrace, I rubbed his fuzzy head, feeling hair there for the first time in our year-long friendship. Later Paxten wrestled me to the floor and stood triumphantly above me giggling at my weakness.

In less than a month, Paxten’s fight against cancer ended at Heaven’s gate. Now my friend Kim Spady is fighting for the life of her son Caleb, a vibrant ten year old boy with a ticking bomb in his brain called a Diffused Intrinsic Pontine Glioma (DIPG).

Caleb, like his brothers, is the joy of his parents’ hearts and the pesky younger brother to Jacob and older brother to Seth and Luke. DIPG is totally random. Kim & Ken could not have protected Caleb from this monster by having the right genetic mix or by sealing Caleb in a bubble from birth. They could not have kept DIPG from attacking their son. But now they will move heaven and earth to win the fight over DIPG. (Caleb passed away on July 21, 2009. He was 11 years old.)

Surely we can all do something to stop these random pediatric cancers from ripping open our hearts and tearing out our children. Kim believes, and I know she is right, that the first step is awareness.

Would you visit one of these links and become a little more aware?

http://www.cancer.gov/cancertopics/types/childhoodcancers

http://www.pcfweb.org/

http://www.justonemoreday.org/index.html

You don’t have to become an expert. Just learn one thing. You don’t have to spend your whole night on the internet (Kim’s already doing that). Just learn a little bit. I’ll never get another hug from Paxten on this side of Glory, but one way I can honor the gift God gave me in Paxten, is to spread the word about pediatric cancers.

Join me, okay? Together, we can strengthen the hope for a cure. Because as Kim says, “One day a child with DIPG will be healed. Maybe even today.”

Olive tree

Aging Gracefully: A Tale of Timelessness

“The olive tree never dies,” Zach told us gesturing to the trees in the Garden of Gethsemane. “These trees are thousands of years old and yet they still bear fruit.”

Zach, the Palestinian who guided our tour of Israel, knew a little something about aging gracefully. A grandfather who had been considering retirement for months, Zach was hard at work, leading our group of 34 American tourists through his homeland. He walked all over Masada and Qumran in 100° heat. He hiked through Megiddo and strode up and down the ancient streets of Old Jerusalem. All the while, Zach shared his knowledge with us: telling the history of the area, quoting scripture chapter and verse, and recalling vignettes particular to the sites we visited. As far as I know, he never once sat to rest; he walked every step I did.

A month after my trip, my family and my sister’s headed to North Myrtle Beach, my parents’ hometown, for our annual vacation. My brother, Hal, and his family were already there. A few weeks earlier, they had moved back to the area and purchased a home right down the road from our parents.

Unfortunately, things were not going well. Because of a series of complications and botched repair jobs, Hal was still not in his new house. For six weeks, his family of five had been living with our parents while my brother became increasingly frustrated with the work crews he’d hired to make his home safe for his family. As we sat around Mother’s dinner table one night talking over my brother’s predicament, the doorbell rang.

“It’s Mr. Rothman,” Mother announced.  “Come in Dick; have some supper.”

Mr. Rothman has been a family friend for 25 years (he watched my brother grow up). He passed retirement age at least 15 years ago. Since that time, he has nursed his beloved wife through Alzheimer’s, becoming her daily visitor when he made the gut-wrenching decision to place her in a nursing home. In addition to spending hours with his wife (who long ago had stopped recognizing him), he visited the other residents of the home. Mr. Rothman brought sunshine to the lonely, even when he was heartbroken with loneliness himself. More than ten years after she became ill, Mr. Rothman’s wife drew her last earthly breath, while her devoted husband looked on, weeping.

Also during the last 15 years, Dick Rothman has been running his own business. An electrician and an expert in air conditioning repair, Mr. Rothman has plenty of opportunities to stay busy. So by 9:00 every morning, Dick Rothman is out making his rounds, visiting customers who’ve relied on him for years.

“Hey, Hal,” Mr. Rothman began that night, “I’ve been thinking about that job you’ve got going on over there at your house.“ He had been over helping my brother with odd jobs while a larger company had replaced all of the duct work in the house and then worked to get the air conditioning running again. The company, though it had come highly recommended, seemed to be botching the job.

“Here’s what they’ve done,“ Mr. Rothman said, taking a ballpoint pen from his shirt pocket and drawing on a table napkin. Hal nodded in agreement.  “And here’s what they should have done.“ He drew a different diagram.

“Uggh!” my brother groaned, “I knew it! I knew they were not doing it right.” Dejected, Hal slumped as he propped his elbows on the table and covered his forehead with his hands.

And then Mr. Rothman laughed aloud.  “Oh now, Hal,” he said, “I didn’t come tell you this to get you worried. Let’s worry about it tomorrow if they don’t fix it.” He folded his hands in his lap, smiled and shook his head, seeming to recall some distant memory.  “’Wait to worry.’ I’ve got that written all through my Bible. ‘Wait to Worry.’ I have to remind myself of that. But the thing is, we’ve got plenty of time to worry.” He patted my brother affectionately. “Let’s worry later.”

Hal knowing Mr. Rothman was right, laughed with his friend--a friend more than four decades older than he, a friend who had reached out to him and pulled him out of his despair.

“The olive tree never dies,“ Zach said. No matter what it has been through, no matter how old it gets, the olive tree keeps bearing fruit. Just like Zach. Just like Dick Rothman.*

On November 6, 2014, Dick Rothman celebrated his 90th birthday. Two days later, he passed from this world into the arms of his Savior, Jesus. Hal's air conditioning still works just fine.

 

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