Update September 1, 2015
Since I published this seven years ago, Caleb Spady slipped from his earthly father's arms into the embrace of his Heavenly Father. He passed away 15 months after his diagnosis on July 21, 2009. Many others have been diagnosed with DIPG since then. It is a cruel and horrible disease.
But there is good news. Research is being done; treatments are being perfected. Because people are becoming more aware, more funding is available for all pediatric cancers. Don't be afraid to learn about pediatric cancer. Awareness doesn't lead to cancer diagnoses. Awareness leads to hope.
Knowledge. It really is a good thing.
September is Childhood Cancer Awareness month. Each year, Chili's holds a Donate-The-Profits day to benefit St. Jude's research hospital. This year, that day is Monday, September 14, 2015. Find a Chili's that day and eat up! Just by doing that, you'll be making a difference in the life a child.
Published on: Aug 29, 2008
Five months ago, at a huge party to celebrate a life that we already knew would be way too short, Paxten Andrew Mitchell gave me a big hug and a kiss. As he fell into my embrace, I rubbed his fuzzy head, feeling hair there for the first time in our year-long friendship. Later Paxten wrestled me to the floor and stood triumphantly above me giggling at my weakness.
In less than a month, Paxten’s fight against cancer ended at Heaven’s gate. Now my friend Kim Spady is fighting for the life of her son Caleb, a vibrant ten year old boy with a ticking bomb in his brain called a Diffused Intrinsic Pontine Glioma (DIPG).
Caleb, like his brothers, is the joy of his parents’ hearts and the pesky younger brother to Jacob and older brother to Seth and Luke. DIPG is totally random. Kim & Ken could not have protected Caleb from this monster by having the right genetic mix or by sealing Caleb in a bubble from birth. They could not have kept DIPG from attacking their son. But now they will move heaven and earth to win the fight over DIPG. (Caleb passed away on July 21, 2009. He was 11 years old.)
Surely we can all do something to stop these random pediatric cancers from ripping open our hearts and tearing out our children. Kim believes, and I know she is right, that the first step is awareness.
Would you visit one of these links and become a little more aware?
You don’t have to become an expert. Just learn one thing. You don’t have to spend your whole night on the internet (Kim’s already doing that). Just learn a little bit. I’ll never get another hug from Paxten on this side of Glory, but one way I can honor the gift God gave me in Paxten, is to spread the word about pediatric cancers.
Join me, okay? Together, we can strengthen the hope for a cure. Because as Kim says, “One day a child with DIPG will be healed. Maybe even today.”